Monica Kleijn Evason

Patient Engagement Advocate
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Independent
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Spain

Monica is a corporate personal and profesional development trainer and in her spare time she's a childhood patient advocate. Her interest is around life after survival and the untold stories about the challenges of navigating life with brain injury. Life after cure is a struggle for both young survivors and their families, with an impact on relationships and mental health post treatment as survivors transition into adulthood. Many can experience survivor guilt, post-traumatic stress and depression through a sense of isolation. Monica offers practical, interactive workshops and conference talks around resilience and the art of being alive. Her book written in collaboration with 10 young brain tumour survivors called “alive and kicking.” is due to be published later this year.

She became a self-confessed “brain nerd” after two members of her family were separately treated for serious brain related illnesses some years ago. She is passionate about making practical guidance from breakthroughs in neuroscience accessible to all through her own down to earth, layman explanations. Over Covid-19 she was part of a voluntary programme to offer support to medical professionals in Spain through the development of "human" skills. These focused particularly on crucial conversations around grief and loss; compassionate leadership and the development of a coaching culture for both patients and medical professionals.

Monica works with medical profesionals at SUCCESS, a charity dedicated to empowering childhood brain tumour survivors as they transition into adulthood; and TEI, a foundation dedicated to improving mental wellbeing in school and in the workplace.